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Pré-publication, Document de travail Année : 2012

The dynamics of causes and conditions: the rareness of diseases in French and Portuguese patients' organizations' engagement in research

Résumé

Highlights the emergence of a "hybrid collective model" of collaboration between patients and experts through a systematic study in the field of rare diseases in France and Portugal, with attention to the reflexive work carried out by patients' organizations on the notion of rareness.

Domaines

Sociologie
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Dates et versions

halshs-00702088, version 1 (29-05-2012)

Identifiants

  • HAL Id : halshs-00702088 , version 1

Citer

Vololona Rabeharisoa, Michel Callon, Angela Marques Filipe, João Arriscado Nunes, Florence Paterson, et al.. The dynamics of causes and conditions: the rareness of diseases in French and Portuguese patients' organizations' engagement in research. 2012. ⟨halshs-00702088⟩
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