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Article dans une revue Journal of Economic Behavior and Organization Année : 2016

The subjective value of a life with Down syndrome: Evidence from amniocentesis decision

Résumé

Using a simple theoretical decision model and an original database, we were able to elicit the distribution of the utility value of having a child with Down syndrome for a large sample of French pregnant women (n = 28,341) between 2003 and 2007. We found that, on a scale where the value of a fetal death is 0 and the value of a healthy child is 1, the mean value for a child with Down syndrome is about −0.6. Assuming that the policymaker used the same decision model as the women, we infer from the French amniocentesis reimbursement regulation an implicit social value for a child with Down syndrome of −2.5. We conclude from our study that the policymaker is more likely to prevent the birth of children with Down syndrome than French women themselves.
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Dates et versions

halshs-01314369, version 1 (11-05-2016)

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Thibault Gajdos, Clémentine Garrouste, Pierre-Yves Geoffard. The subjective value of a life with Down syndrome: Evidence from amniocentesis decision. Journal of Economic Behavior and Organization, 2016, 127, pp.59-69. ⟨10.1016/j.jebo.2016.04.014⟩. ⟨halshs-01314369⟩
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