Implementing long-term follow-up after pediatric cancer: ethical tensions and survivors' perspective - Archive ouverte HAL Access content directly
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Implementing long-term follow-up after pediatric cancer: ethical tensions and survivors' perspective

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Abstract

How the cancer episode is perceived has an impact on how the follow-up is approached. People for whom cancer is an episode of the past may be less concerned with follow-up than those for whom cancer is experienced as a chronic condition. However, this perception does not always correspond to the medically assessed state of health: the perception of cancer episode depends on the pathology/the perceived health status/the late effects of treatments/the existing medical follow-up, evolves in the same person according to the occurrence of symptoms related to lateeffects/knowledge about the risk of lateeffect/intensification or termination of followup, etc., fluctuates according to time of life and constraints or expectations associated with them. II. Different Expectations at Different Times of Life: Needs and expectations regarding LTFU vary significantly according to age, periods of life, and related constraints, or to the acceptance of the medical history that sometimes evolves:
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Dates and versions

halshs-03930682 , version 1 (09-01-2023)

Licence

Attribution - CC BY 4.0

Identifiers

  • HAL Id : halshs-03930682 , version 1

Cite

Agathe Camus, Julie Henry, Charlotte Demoor-Goldschmidt, Claire Berger, Cecile Faure-Conter, et al.. Implementing long-term follow-up after pediatric cancer: ethical tensions and survivors' perspective. 53rd International Society of Paediatric Oncology (SIOP) Congress, Oct 2021, Online, France. . ⟨halshs-03930682⟩
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