Implementing long-term follow-up after pediatric cancer: ethical tensions and survivors' perspective
Agathe Camus
(1, 2)
,
Julie Henry
(3, 4)
,
Charlotte Demoor-Goldschmidt
(5)
,
Claire Berger
(6)
,
Cecile Faure-Conter
(7)
,
Léonie Casagranda
(8)
1
SPHERE UMR 7219 -
Sciences, Philosophie, Histoire
2 UPCité - Université Paris Cité
3 ENS de Lyon - École normale supérieure de Lyon
4 TRIANGLE - Triangle : action, discours, pensée politique et économique
5 INSERM - Institut National de la Santé et de la Recherche Médicale
6 CNRS - Centre National de la Recherche Scientifique
7 IHOPe - Institut d'hématologie et d'oncologie pédiatrique [CHU - HCL]
8 CHU ST-E - Centre Hospitalier Universitaire de Saint-Etienne [CHU Saint-Etienne]
2 UPCité - Université Paris Cité
3 ENS de Lyon - École normale supérieure de Lyon
4 TRIANGLE - Triangle : action, discours, pensée politique et économique
5 INSERM - Institut National de la Santé et de la Recherche Médicale
6 CNRS - Centre National de la Recherche Scientifique
7 IHOPe - Institut d'hématologie et d'oncologie pédiatrique [CHU - HCL]
8 CHU ST-E - Centre Hospitalier Universitaire de Saint-Etienne [CHU Saint-Etienne]
Agathe Camus
- Fonction : Auteur
- PersonId : 18235
- IdHAL : agathe-camus
- ORCID : 0000-0003-0820-8941
- IdRef : 252362543
Julie Henry
- Fonction : Auteur
- PersonId : 15072
- IdHAL : julie-henry
- IdRef : 170422437
Léonie Casagranda
- Fonction : Auteur
- PersonId : 1237665
- ORCID : 0000-0001-9297-6278
Résumé
How the cancer episode is perceived has an impact on how the follow-up is approached. People for whom cancer is an episode of the past may be less concerned with follow-up than those for whom cancer is experienced as a chronic condition. However, this perception does not always correspond to the medically assessed state of health: the perception of cancer episode depends on the pathology/the perceived health status/the late effects of treatments/the existing medical follow-up, evolves in the same person according to the occurrence of symptoms related to lateeffects/knowledge about the risk of lateeffect/intensification or termination of followup, etc., fluctuates according to time of life and constraints or expectations associated with them. II. Different Expectations at Different Times of Life: Needs and expectations regarding LTFU vary significantly according to age, periods of life, and related constraints, or to the acceptance of the medical history that sometimes evolves:
Domaines
PhilosophieFormat du dépôt | Fichier |
---|---|
Type de dépôt | Poster de conférence |
Titre |
en
Implementing long-term follow-up after pediatric cancer: ethical tensions and survivors' perspective
|
Résumé |
en
How the cancer episode is perceived has an impact on how the follow-up is approached. People for whom cancer is an episode of the past may be less concerned with follow-up than those for whom cancer is experienced as a chronic condition. However, this perception does not always correspond to the medically assessed state of health: the perception of cancer episode depends on the pathology/the perceived health status/the late effects of treatments/the existing medical follow-up, evolves in the same person according to the occurrence of symptoms related to lateeffects/knowledge about the risk of lateeffect/intensification or termination of followup, etc., fluctuates according to time of life and constraints or expectations associated with them. II. Different Expectations at Different Times of Life: Needs and expectations regarding LTFU vary significantly according to age, periods of life, and related constraints, or to the acceptance of the medical history that sometimes evolves:
|
Auteur(s) |
Agathe Camus
1, 2
, Julie Henry
3, 4
, Charlotte Demoor-Goldschmidt
5
, Claire Berger
6
, Cecile Faure-Conter
7
, Léonie Casagranda
8
1
SPHERE UMR 7219 -
Sciences, Philosophie, Histoire
( 1004988 )
- 5 rue Thomas Mann, 75205 PARIS CEDEX 13
- France
2
UPCité -
Université Paris Cité
( 557826 )
- 85 boulevard Saint-Germain
75006 Paris
- France
3
ENS de Lyon -
École normale supérieure de Lyon
( 6818 )
- 15 parvis René Descartes - BP 7000 - 69342 Lyon Cedex 07
- France
4
TRIANGLE -
Triangle : action, discours, pensée politique et économique
( 145357 )
- 15, parvis René-Descartes - BP 7000 69342 LYON CEDEX 07
- France
5
INSERM -
Institut National de la Santé et de la Recherche Médicale
( 303623 )
- 101, rue de Tolbiac, 75013 Paris
- France
6
CNRS -
Centre National de la Recherche Scientifique
( 441569 )
- France
7
IHOPe -
Institut d'hématologie et d'oncologie pédiatrique [CHU - HCL]
( 348446 )
- 1 place Professeur Joseph Renault
69008 Lyon
- France
8
CHU ST-E -
Centre Hospitalier Universitaire de Saint-Etienne [CHU Saint-Etienne]
( 51335 )
- 42055 Saint Etienne cedex 2
- France
|
Licence |
Paternité
|
Langue du document |
Anglais
|
Date début congrès |
2021-10-21
|
Vulgarisation |
Non
|
Date fin congrès |
2021-10-24
|
Comité de lecture |
Oui
|
URL du congrès ou éditeur |
https://2021.siop-congress.org/
|
Invité |
Non
|
Audience |
Internationale
|
Actes |
Non
|
Titre du congrès |
53rd International Society of Paediatric Oncology (SIOP) Congress
|
Ville |
Online
|
Pays |
France
|
Domaine(s) |
|
Origine :
Fichiers produits par l'(les) auteur(s)
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