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Article dans une revue European Journal of Health Law Année : 2015

Integrating Advance Research Directives into the European Legal Framework

Résumé

The possibility of using advance directives to prospectively consent to research participation in the event of dementia remains largely unexplored in Europe. Moreover, the legal status of advance directives for research is unclear in the European regulations governing biomedical research. The article explores the place that advance research directives have in the current European legal framework, and considers the possibility of integrating them more explicitly into the existing regulations. Special focus is placed on issues regarding informed consent, the role of proxies, and the level of acceptable risks and burdens.

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Dates et versions

halshs-01442639, version 1 (08-07-2023)

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Roberto Andorno, Éloïse Gennet, Karin Jongsma, Bernice Elger. Integrating Advance Research Directives into the European Legal Framework. European Journal of Health Law, 2015, 23 (2), pp.158-173. ⟨10.1177/1747016114523422⟩. ⟨halshs-01442639⟩
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