The dynamics of causes and conditions: the rareness of diseases in French and Portuguese patients' organizations' engagement in research - HAL-SHS - Sciences de l'Homme et de la Société Accéder directement au contenu
Pré-Publication, Document De Travail Année : 2012

The dynamics of causes and conditions: the rareness of diseases in French and Portuguese patients' organizations' engagement in research

Résumé

Highlights the emergence of a "hybrid collective model" of collaboration between patients and experts through a systematic study in the field of rare diseases in France and Portugal, with attention to the reflexive work carried out by patients' organizations on the notion of rareness.
Fichier principal
Vignette du fichier
WP_CSI_026.pdf (562.82 Ko) Télécharger le fichier
Origine : Fichiers produits par l'(les) auteur(s)
Loading...

Dates et versions

halshs-00702088 , version 1 (29-05-2012)

Identifiants

  • HAL Id : halshs-00702088 , version 1

Citer

Vololona Rabeharisoa, Michel Callon, Angela Marques Filipe, João Arriscado Nunes, Florence Paterson, et al.. The dynamics of causes and conditions: the rareness of diseases in French and Portuguese patients' organizations' engagement in research. 2012. ⟨halshs-00702088⟩
322 Consultations
363 Téléchargements

Partager

Gmail Facebook X LinkedIn More